Sunday, May 31, 2015

First Dentist Appointment


Bryan had his first dental appointment this week. 

He did REALLY well - he cooperated for everything including x-rays!

but.....turns out he has EIGHT CAVITIES :(

including THREE teeth that need root canals and crowns :(

This really isn't unusual based on having spent his first 4 years in an orphanage...

but Darren came home with GREAT teeth and we had hoped the same for Bryan.

Oh - my poor sweet Bryan....so much dental work is no fun :(
(I was hoping he might be able to get it taken care of in the hospital - all at once - and where he wouldn't remember it, but it doesn't look like our insurance covers such treatment)

Please pray for Bryan - that he would be in no pain while we get our insurance coverage figured out (he may have to wait until January for treatment)....and that he won't have a negative dental experience.

Bryan just LOVES playing outside!

Did I mention how much I just LOVE this sweet boy?!

Bryan definitely has MY HEART!

 and I thank God daily for opening up my heart/allowing me to LOVE Bryan as my own!

Blessings, Sandy

Saturday, May 23, 2015

BIG Day!


Bryan had his BIG appointment today. The one where he sees his neurologist, physical - medicine - and rehab. doctor, and PT all at the same time. 

And....He ROCKED it!

They were IMPRESSED BY HOW WELL HE IS DOING!!

Although he is still a MYSTERY - they are leaning AWAY from SMA!! and towards polio or another virus that effected his nerves and muscles.

They think he is getting STRONGER!!

They think he is asymmetric - which would again rule OUT SMA!!
(Although they do admit they know almost nothing about Distal SMA which is what they have suspected he has.....)


He WALKED AROUND THE ROOM WITH HIS WALKER - like a BOSS!!

The HOPE in that room was PALPABLE!!

PRAISING GOD FROM WHO ***ALL*** BLESSING FLOW!!!

Bryan starts additional PT in June....Aqua Therapy - how COOL is that?!

Also in June we FINALLY have our appointment with genetics.

Feeling hopeful and resting in the HOPE given by Jesus, Sandy

Friday, May 15, 2015

Mother's Day



Last year I received THE BEST MOTHER'S DAY GIFT *EVER*!!!

This picture - 

of the son we were waiting for, dreaming of, praying for, tackling a mountain of paperwork for....


And THIS YEAR - my first Mother's Day as a MOM to EIGHT blessings!

Blessings, Sandy