Saturday, May 23, 2015

BIG Day!


Bryan had his BIG appointment today. The one where he sees his neurologist, physical - medicine - and rehab. doctor, and PT all at the same time. 

And....He ROCKED it!

They were IMPRESSED BY HOW WELL HE IS DOING!!

Although he is still a MYSTERY - they are leaning AWAY from SMA!! and towards polio or another virus that effected his nerves and muscles.

They think he is getting STRONGER!!

They think he is asymmetric - which would again rule OUT SMA!!
(Although they do admit they know almost nothing about Distal SMA which is what they have suspected he has.....)


He WALKED AROUND THE ROOM WITH HIS WALKER - like a BOSS!!

The HOPE in that room was PALPABLE!!

PRAISING GOD FROM WHO ***ALL*** BLESSING FLOW!!!

Bryan starts additional PT in June....Aqua Therapy - how COOL is that?!

Also in June we FINALLY have our appointment with genetics.

Feeling hopeful and resting in the HOPE given by Jesus, Sandy

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